Video of the activity “Rare diseases - Communities of Practice” held on 6 March 2023
On 6 March 2023, the EVES - GSK - UV Chair organised an activity about Rare Diseases. On it, 4 associations (#AFICAVAL, #ADELACV, #AVAEH y #ASHECOVA) shared their experiences so that attendees could understand how the patients live from a more humane perspective.
The activity is done in what is called Communities of Practice or CoP, due to its initials. The CoP define themselves as social groups constituted in order to develop specialised knowledge, sharing learning based in the shared reflection about practical experiences.
