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Description

The end-of-life care line began with the participation of Enric Benito and Pilar Barreto in agreements between the UV and the SECPAL (Spanish Society of Palliative Care) to jointly design a measure of spirituality in patients that was clinically, psychometrically and culturally relevant to measure the resources to deal with symptomatology beyond the physical at the end of life. After a decade of productive collaboration, research in this field (EPIONE study) progressed towards intervention (KIBO protocol). On the other hand, always with the emphasis on methodology, the proposal and validation of new measurement tools, research was extended to other relevant topics such as dignity or demoralisation syndrome in patients.

The efficiency of interventions on quality of life is designed and studied in patients and their environment as well as in professionals. In the case of professionals, research is carried out not only in the health field, whether in palliative care, intensive care or home care, but also in general in professional activities with high emotional demand, such as care for people with functional diversity, children with developmental disorders or police. There are several interventions based on Positive Psychology that show effectiveness in reducing stress in professionals with high emotional demand.

From ARMAQoL, with an emphasis on methodology and in collaboration with clinical experts from the UV, we investigate the use of different mechanisms and formats of these interventions, making them more appealing, and trying to reduce dropout rates. In professionals, the multicentre YASO study, in collaboration with the UIB (Noemí Sansó, member of the team) was our first incursion into the inner curriculum of palliative care professionals. Nowadays, this research, with a strong theoretical basis, has been consolidated as a diagnostic approach in health systems in numerous countries, in different languages.

Currently, in this line, we are developing the project ‘Longitudinal study of compassion’ and other determinants of professional quality of life: A research on palliative care professionals at national level (CompPal), financed by the State Research Agency - 2018 Calls, R&D&I Projects Research Challenges.

  • Galiana, L., Sansó, N., Muñoz-Martínez, I., Vidal-Blanco, G., Oliver, A., & Larkin, P. J. (2021). Palliative Care Professionals' Inner Life: Exploring the Mediating Role of Self-Compassion in the Prediction of Compassion Satisfaction, Compassion Fatigue, Burnout and Wellbeing. Journal of Pain and Symptom Management.
  • Sansó, N., Vidal-Blanco, G., & Galiana, L. (2021). Development and Validation of the Brief Nursing Stress Scale (BNSS) in a Sample of End-of-Life Care Nurses. Nursing Reports, 11(2), 311-319.
  • Moreno-Mulet, C., Sansó, N., Carrero-Planells, A., López-Deflory, C., Galiana, L., García-Pazo, P., ... & Miró-Bonet, M. (2021). The Impact of the COVID-19 Pandemic on ICU Healthcare Professionals: A Mixed Methods Study. International Journal of Environmental Research and Public Health, 18(17), 9243. 
  • Sansó, N., Vidal-Blanco, G., Galiana, L., & Oliver, A. (2021). Development and Psychometric Validation of the Brief Nurses' Practice Environment Scale and Its Relation to Burnout Syndrome and Job Satisfaction: A Study in Spanish Nurses. Frontiers in public health, 9.
  • Pérez-Belmonte, S., Galiana, L., Fernández, I., Vidal-Blanco, G., & Sansó, N. (2021). The Personal Wellbeing Index in Spanish Palliative Care Professionals: A Cross-Sectional Study of Wellbeing. Frontiers in Psychology, 12.
  • Oliver, A., Galiana, L., Simone, G. D., Tomás, J. M., Arena, F., Linzitto, J., ... & Sansó, N. (2021, January). Palliative care professionals' inner lives: Cross-cultural application of the awareness model of self-care. In Healthcare (Vol. 9, No. 1, p. 81). Multidisciplinary Digital Publishing Institute.
  • Rudilla, D., Oliver, A., Galiana, L., Valenzuela, C., & Ancochea, J. (2021). Patients Suffering from a Chronic, Irreversible Illness: A Novel Study on the Psychological Intervention out of the Hospital. In Palliative Care for Chronic Cancer Patients in the Community (pp. 133-143). Springer, Cham.
  • Galiana, L., Oliver, A., Arena, F., De Simone, G., Tomás, J. M., Vidal-Blanco, G., ... & Sansó, N. (2020). Development and validation of the Short Professional Quality of Life Scale based on versions IV and V of the Professional Quality of Life Scale. Health and Quality of Life Outcomes, 18(1), 1-12.
  • Soto-Rubio, A., Perez-Marin, M., Rudilla, D., Galiana, L., Oliver, A., Fombuena, M., & Barreto, P. (2020). Responding to the Spiritual Needs of Palliative Care Patients: A Randomized Controlled Trial to Test the Effectiveness of the Kibo Therapeutic Interview. Frontiers in Psychology, 11, 1979.
  • Sansó, N., Galiana, L., Oliver, A., Tomás-Salvá, M., & Vidal-Blanco, G. (2020). Predicting professional quality of life and life satisfaction in Spanish nurses: a cross-sectional study. International journal of environmental research and public health, 17(12), 4366.
  • Arena, F., Oliver, A., & Galiana, L. (2019). Overview of the Quality of Work Life of Palliative Caregivers in Brazil. Revista Colombiana de Psicología, 28(2), 33-45.
  • Sansó, N., Galiana, L., González, B., Sarmentero, J., Reynes, M., Oliver, A., & Garcia-Toro, M. (2019). Differential effects of two contemplative practice-based programs for health care professionals. Psychosocial Intervention, 28(3), 131-138.
  • Galiana, L., Oliver, A., De Simone, G., Linzitto, J. P., Benito, E., & Sansó, N. (2019). A brief measure for the assessment of competence in coping with death: The coping with death scale short version. Journal of pain and symptom management, 57(2), 209-215.
  • Sanso, N., Galiana, L., Oliver, A., Cuesta, P., Sanchez, C., & Benito, E. (2018). Evaluation of a mindfulness intervention in palliative care teams. Psychosocial Intervention, 27(2), 81-88.
Keywords

intervention, quality of life, spirituality, palliative care, dignity, full care, self-care, self-compassion, coping with death, demoralisation, consciousness, mindfulness