Debate of Claustre Obert in La Nau

Claustre obert

Radiografía urgente de las Enfermedades Raras (ER). (Urgent radiography of Rare Diseases).

Participants:

Mercedes Navarro, journalist and editor of the Spanish Journal of Osteoarticular Surgery (RECO): Las enfermedades raras en los medios de comunicación (Rare diseases in the media)

Rafael Fernández-Delgado, tenured professor of the Department of Pediatrics, Obstetrics and Gynecology of the University of Valenica: La atención a las enfermedades raras en unidades de referencia (Attention to rare diseases in reference units).

Federico Pallardó, Dean of the Faculty of Medicine and Dentistry, and Full University Professor of Physiology of the University of Valencia:  Docencia e investigación en enfermedades raras (Teaching and research in rare diseases).

Almudena Amaya, representative of the Federación Española de Enfermedades Raras (Spanish Federation of Rare Diseases) in the Valencian Community: El punto de vista de los pacientes y de las familias en enfermedades poco frecuentes. (The perspective of patients and families in rare diseases).

Presented by:

Francisco Dasí, Researcher “Miguel Servet” of the Foundation for the Research of the Hospital Clínico Universitario of Valencia/IIS INCLIVA, Professor of Physiology of the University of Valencia.

Moderated by:

Esteban Morcillo, Principal of the University of Valencia.

Free admission, limited seating.

The lecture will be broadcast live on the Television of the University by Internet, Mediauni (channelwww.mediauni.uv.es/tv) and the audio-visual file can be consulted on the Culture channel of the same media