ASPANION (Parents Association with children with cancer of the Valencian Community) gave its recognition to the Spanish Registry of Children with Tumours (RETI-SEHOP), located at the Universitat de València. The event took place at MUVIM on 11th September, on the occasion of the 30th anniversary of ASPANION.
It also received a recognition the three Pediatric Oncology Units of the Valencian Community, the Spanish Federation of Parents of Children with Cancer, as well as the Villarreal CF, the Penya Celtic Submarí, La Caixa Foundation, the staff of ASPANION and all its volunteers.
The Universitat de València and the Ministry of Health have signed a call to promote the development and maintenance of the Spanish Registry of Children with Tumours (RETI-SEHOP). The agreement includes the financing of the ministry for the development and maintenance of RETI.
Spanish Registry of Children with Tumours (RETI-SEHOP) is a science project, in collaboration between the Spanish Association of Pediatric Hematology and Oncology (SEHOP) and the Universitat de València, where the Research Group that acts as the Central Team of the Registry is located. It is a referent benchmark project for the child cancer, which contributes to the fight against cancer in the childhood through the study of the survival of the children with cancer in Spain and its international comparison; the study of the incidence and its tendencies; and collaborating to the study of the casual risk factors.
The Registry synthesises the global results and progresses of the pediatric oncology in Spain and is its self-evaluation tool. All the onco-hematology units of Spain are Reporting Establishments of the Registry and collaborate by notifying the data of the cancer cases that are diagnosed. Nowadays there are 44 Reporting Establishments. The RETI-SEHOP maintains the collaboration with the autonomic and provincial Cancer Registries of Spain to the mutual improvement of the information and development of joint projects on influences and survival of the child and adolescent tumours in Spain. At present, the cancer survivors in people under-fifteen have increased spectacularly, from a 50%, in the start of the project, until almost the 80% nowadays.
The RETI-SEHOP, located at the Universitat de València since its creation, in 1980, is a central registry based in a network of hospital units that inform about the cases. Thus, its data cover the entire country capturing over the 90% of child tumours in Spain; and getting closer to the 100% of the cases in Aragon, Catalonia, Euskadi, Madrid, and Navarra.
The Registry has an important international projection and participates nowadays in six international projects, contributing to the knowledge of the child cancer in Europe, to the improvement of the information on these cancers and to the evaluation of the Spanish results in comparison with the European countries.
The mission of RNTI-SEHOP is to carry out epidemiological research that contributes to the improvement of the assistance to child cancer in Spain, to getting to know this tumours in our country and to the study of the causes of these pathologies. Among their main objectives it is the elaboration of survival studies and of efficacy of the assistance to the oncological children in Spain and their regions. Besides, they analyse the temporal tendencies and elaborate international comparisons. They also work on the assistance coverage, the notarisation, the incidence studies of child cancer in Spain and Europe and the geographic differences and contribute to the study of the causes of the child cancer.
Spanish Registry of Children with Tumours (RETI-SEHOP) was founded in 1980, as joint project of the SEOP, nowadays Spanish Society of Pediatric Hematology and Oncology (SEHOP) and the research team of the Universitat de València that, under the direction of professor Rafael Peris Bonet, has been developed since then. The pediatric oncology units of the Spanish hospitals take part in the network of reporting establishments that provides the primary data.
Since April 2007, the central team of the RETI-SEHOP is constituted as Research Group of the Universitat de València with the name “National Registry of Children with Tumours (RNTI-SEHOP)”, according with the framework agreement of 26th April 2007 between the Spanish Society of Pediatric Oncology (SEOP [today, SEHOP]) and the Universitat de València. The Registry has been listed as publicly owned files in the General Data Protection Registry in the Spanish Data Protection Agency. Coinciding with this new stage, the RNTI-SEHOP has passed the name change of the National Registry of Children with Tumours, which will be renamed as Spanish Registry of Child Tumours, and therefore it will be called from now on RENTI-SEHOP.
Last update: 22 de september de 2015 08:38.
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